Showing posts with label happy. Show all posts
Showing posts with label happy. Show all posts

Wednesday, January 16, 2013

Anything is Possible

I was inspired this evening. I have felt inspired so many times, but this time it just gripped me around the shoulders and shook me. Leave it to American Idol. I just saw a young man on there who is a survivor of osteosarcoma. He was a dancer and a singer and was destined for Broadway before cancer interrupted his life at the age of 19. After months of chemo and surgeries he ended up having to lose his right leg in order to survive. And here I was sitting on the couch, tired from being at the doctor's twice in one week and sorta feeling down about missing work for a week because I have Pneumonia and type A Flu. I am definitely a believer of POSITIVITY IS POWER, but sometimes we just need a jolt. 2011 into 2012 was quite the year. I found out I had a pulmonary blood-clot and spent 6 months taking shots (thank you sweet Sean for giving them to me daily!). The bone tumor in my left arm that we had been watching was malignant and so the humerus was replaced by a titanium rod. Determined to remain left handed, I went to PT 3 days a week. I finished my masters in library science, but cut-backs in our schools meant that I couldn't continue to be an elementary school librarian. At the same time, my oncologist at Md Anderson basically said that he didn't have answers or time and that he felt it best to see me in 5 years and he would then at that time work on prolonging my life. We knew it was time to find a second opinion.

With two major changes in my life, Health and Career, I wanted to keep the faith and keep moving forward. I knew He had a plan for me and with that belief, things would work out and the pieces would fall into place. To be honest, I felt like this was a puzzle that would take forever to solve, but the pieces seemed to fall into place so quickly. By April I had met my new oncologist, Daniel Lehane, at Methodist. He is current and caring and he believes - no he KNOWS - that I will beat this. I knew that. You knew that. But it sure is nice to have the medical support behind me all the way too. I fell in love with him and Methodist. I also fell in love with Blocker Middle School. A friend told me about a position teaching reading and novels there. My heart just melted when I walked into those doors. I knew that this was the next step for me. Every day with my kiddos has been a blessing. Funny thing is, they really aren't that different from my sweet 1st graders. Just taller and with a more colorful vocabulary.

We had a tiny set back in the summer as we spent the whole summer fighting with insurance to approve stereo tactic radiation so that we could zap the tumors that Md Anderson had left behind in both lung surgeries. This type of radiation is more severe, but it is better than having surgery and has superb results for knocking out the small hard to treat tumors. Finally insurance said yes. For the first two weeks of school (after work) I underwent five treatments; the first one was two hours long and the next four were close to an hour and a half. I rang the bell to show that I had finished, but the next week, I got very sick. I was having horrible headaches and nose bleeds and went back to Dr. Paulino, my radiation oncologist. I had hypertension and pneumonitis. Just to be thorough, they did an MRI of my head and neck and orbits and found a large bone tumor in my C1. It had probably been growing there for the past 3 years. Miraculously at 21mm it was not pushing on my spinal chord, but it couldn't be surgically removed either. Three more weeks of arguing these points with insurance and I was approved for another 5 rounds of stereo tactic radiation. Once again I rang the bell. After a month of healing, I went back to see Dr. Lehane. All tumors are shrinking and should be gone gone gone with in the year!! Next step was to meet my urologist, Graham Guerrero, who is equally caring and compassionate and funny. He shared a lot things about my kidney and about how amazing my body is doing considering all that it has been through (Dr. Lehane was also impressed by how good I looked considering). We learned that it is better for the stent to stay in at this time and I was confident knowing that he was going to perform the surgery himself (Dec. 28th). Surgery was a success and to celebrate, my awesome hubby surprised me with a trip to Disney World. :) We had a wonderful weekend meeting Goofy and Pluto and walking miles on end eating Mickey shaped ice-creams and getting beaten up on all the fast roller coasters...and all the other ones too.

Today we met my nephrologist, Juan Sr. Olivero. His job is to make sure that my good kidney stays healthy. And of course he was also fabulous! I have complete faith in all of my doctors there. They are truly so kind and knowledgeable and make you feel like you are their only patient no matter what day it is. I also love that all of these doctors work together and have met to discuss my case. I feel like I have a huge support team there and that leads to a long and healthy life. The future may be unknown, but its definitely bright and optimistic. Next step; get the lungs back to complete HEALTHY and meet Dr. Carter, our high-risk pregnancy doctor. Praying daily to hear that all this waiting will lead to a new little Hawes.

Monday, July 6, 2009




So I found yet another perk about Mda....when you do not have a working computer at home, use the one at Mda! We have a virus on ours and we haven't been home much to fix it. The whole thing is a mess right now, but I'll work on it some day this week for sure....unless I have any volunteers to come sit at my computer and talk with Microsoft, Norton, and Comcast to fix it.....no - no takers to do that and I understand completely.
Anyhoo....here I am. It's testing day. I had labs and x-rays earlier and now Sean and I are hanging out till our 2:30pm CT appt. I'll come again tomorrow morning to see Dr. B for the results. I feel like he will say that everything is running on course as it should be. I am almost finished with the 1st month's dosage of Sutent and hopefully my white blood cell count comes back great so that I can continue on to the second month. I am positive it will!
Speaking of Positivity is Power, let me tell you about camp!! For those of you that were there with me....ice cream and cake, ice cream and cake, now slip slip slip slide, slip slip slip slide......Needless to say, I had the most amazing journey at Camp 4 All with the Rainbow connection. You really HAVE to go to www.rccamp.org to see this. The staff was amazing (but camp 4 rocked it out!!!!), and the kiddos were incredible! The rainbow connection just celebrated it's 25th year of taking kids 6-15 that have cancer, blood disorders, or are siblings of those that do. And the camp is the coolest ever!! Thanks to so many amazing sponsors, these kids get to have one of the most amazing weeks of their lives. And most of them come back year after year....and I met 2 of the sweetest counselors that were campers then Jr counselors and now counselors! Along the way, I made some of the most amazing campers and counselors and made some pretty neat new friendships. When I say that I can't wait for next year, I mean that I really can't wait for next year. Janis asked if she could give out my Positivity bracelets to campers and staff. WOW!!! So every time someone was "caught" stargazing....just kidding....being or doing something positive, she would give them a bracelet and yes, by the end of the week, everyone had one!!!! I really hope they will do that next year.
Will email again tomorrow after I see Dr. B.

Carpe Diem!!