Tuesday, July 7, 2009

The Journey Continues

We met with Dr. B today. I think we got out of there in record time.....our parking fee was *only* $9 and we saw Dr. B at 10ish (our appt time was 9). That's good! These appts usually involve a much longer wait. I don't even want to think about what he has to say to the patients he sees before me. Say an extra prayer for Jackie. I met her in the waiting room this morning and she has Dr. B too. She was waiting to be admitted for round 2 today. She has MFH Sarcoma. She was diagnosed on Mother's Day. She's a mom, a wife, a friend, a sister, and even an attorney for Walmart in Arkansas and she's a fighter (a survivor). She is going to make it - I just know it!

Dr. B said the results showed that my tumor was "not better and not worse....just fine". He went on to say that he couldn't say much about my tumors. He said they are so lazy, dormant, that it is truly hard to see the activity level. They could be dead and that would be awesome!! We really need to stay on the Sutent and wait and see what is happening to them. It will take time...I have lots of it! We will still continue this chemo even after he is sure about those tumors because we need to make sure that nothing else grows. He said that he really needs to keep watching these tumors. Remember, they grow slow and they are shrinking away slowly too. He also decided that I don't need to take a break from the Sutent. I will continue to take the same dose every day with no stops in between. I will also start seeing him every four weeks so he can see how I am doing and how the tumors are doing. I will see him again after the 1st of August.

Thank you so much for your prayers! Keep 'em coming!!
POSITIVITY IS POWER!!!!!!!!!

Monday, July 6, 2009




So I found yet another perk about Mda....when you do not have a working computer at home, use the one at Mda! We have a virus on ours and we haven't been home much to fix it. The whole thing is a mess right now, but I'll work on it some day this week for sure....unless I have any volunteers to come sit at my computer and talk with Microsoft, Norton, and Comcast to fix it.....no - no takers to do that and I understand completely.
Anyhoo....here I am. It's testing day. I had labs and x-rays earlier and now Sean and I are hanging out till our 2:30pm CT appt. I'll come again tomorrow morning to see Dr. B for the results. I feel like he will say that everything is running on course as it should be. I am almost finished with the 1st month's dosage of Sutent and hopefully my white blood cell count comes back great so that I can continue on to the second month. I am positive it will!
Speaking of Positivity is Power, let me tell you about camp!! For those of you that were there with me....ice cream and cake, ice cream and cake, now slip slip slip slide, slip slip slip slide......Needless to say, I had the most amazing journey at Camp 4 All with the Rainbow connection. You really HAVE to go to www.rccamp.org to see this. The staff was amazing (but camp 4 rocked it out!!!!), and the kiddos were incredible! The rainbow connection just celebrated it's 25th year of taking kids 6-15 that have cancer, blood disorders, or are siblings of those that do. And the camp is the coolest ever!! Thanks to so many amazing sponsors, these kids get to have one of the most amazing weeks of their lives. And most of them come back year after year....and I met 2 of the sweetest counselors that were campers then Jr counselors and now counselors! Along the way, I made some of the most amazing campers and counselors and made some pretty neat new friendships. When I say that I can't wait for next year, I mean that I really can't wait for next year. Janis asked if she could give out my Positivity bracelets to campers and staff. WOW!!! So every time someone was "caught" stargazing....just kidding....being or doing something positive, she would give them a bracelet and yes, by the end of the week, everyone had one!!!! I really hope they will do that next year.
Will email again tomorrow after I see Dr. B.

Carpe Diem!!